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The # 1 wish parents have for their child is a cure.

Our core belief is recognizing the need to bring together unique services offered by a breadth of providers including pediatric palliative and hospice programs, home health agencies, medical institutions and specialists, therapists, education resources, mental and behavioral health teams, DME suppliers, and nonprofit organizations amongst others.
 

To fully serve the needs of children with life-limiting conditions and their families, we must consider a comprehensive community approach that includes all relevant support.

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VISION:

 

All children living with very complex medical conditions and their families will be able to  access a safe, compassionate, and skilled haven in their community for trusted respite and palliative care support along their difficult journey.  

MISSION:

 

To scale, strengthen and sustain the growing network of Pediatric Palliative Care and Respite homes (Children’s Respite Homes) across the U.S.  We provide a collaborative forum to inspire and learn from each other, elevate best practices, and strengthen our collective voice to champion Federal and State regulatory system changes, develop appropriate funding pathways, establish high quality delivery standards, and increase awareness of these expanding caregiving models to address the severe care gap in healthcare access for vulnerable, medically fragile, children and their parents.

 

To collaborate openly with other associations, coalitions, and organizations sharing a common purpose to enhance the quality of life for children and families recognizing that together we have a stronger voice to improve healthcare delivery systems.

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