EDUCATION & AWARENESS
Building a movement begins with understanding — and reshaping how the world sees families of children with medical complexities.
Through our Education & Awareness work, we elevate the voices of families, highlight the care gaps they face, and shine a spotlight on the community-based models that can change everything. By telling the story of pediatric palliative care homes and the families they serve, we are growing public recognition, professional understanding, and cross-sector support for this urgently needed infrastructure.
This work includes national media and conference engagement, in-person site visits, research-informed storytelling, and the curation of key data and insights — all designed to inform, inspire, and activate others.
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Explore the sections below to see how we’re shaping the conversation.
Subpage Introductions
Impact Report
A snapshot of our progress — highlighting the milestones, partnerships, and national momentum advancing pediatric respite, palliative, and hospice care homes.
​Impact Calendar
A running list of media features, podcasts, webinars, and events where our leadership, partners, and families are helping raise awareness.
On the Ground
A photo collection of our in-person impact — from site visits and home tours to conference keynotes and community gatherings.
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Care Continuum & Medicaid Alignment
An exploration of how pediatric palliative care homes strengthen the healthcare continuum — supporting families while helping reduce unnecessary hospital and emergency care through sustainable reimbursement pathways.
Inside a Care Home
An introduction to the model of freestanding pediatric respite, palliative, and hospice care homes — how they work, who they serve, and why they matter.
Need for Respite
A deeper look at why overnight respite is one of the most urgent, unmet needs for families caring for children with life-limiting conditions.
Insights & References
A library of essential data, visuals, and research insights that reveal the scope of the need and the opportunity for systemic change.