EDUCATION & AWARENESS
Building a movement begins with understanding — and reshaping how the world sees families of children with medical complexities.
Through our Education & Awareness work, we elevate the voices of families, highlight the care gaps they face, and shine a spotlight on the community-based models that can change everything. By telling the story of pediatric palliative care homes and the families they serve, we are growing public recognition, professional understanding, and cross-sector support for this urgently needed infrastructure.
This work includes national media and conference engagement, in-person site visits, research-informed storytelling, and the curation of key data and insights — all designed to inform, inspire, and activate others.
Explore the sections below to see how we’re shaping the conversation.
Subpage Introductions
Impact Report
A snapshot of our progress — highlighting the milestones, partnerships, and national momentum advancing pediatric respite, palliative, and hospice care homes.
Impact Calendar
A running list of media features, podcasts, webinars, and events where our leadership, partners, and families are helping raise awareness.
On the Ground
A photo collection of our in-person impact — from site visits and home tours to conference keynotes and community gatherings.
Understanding PPCCenters
An overview of the Pediatric Palliative Care Center (PPCCenter) model — how it strengthens community-based pediatric care, supports families, and collaborates with existing healthcare providers.
Why Families Need PPCRespite
An exploration of how trusted overnight Pediatric Palliative Care Respite (PPCRespite) helps families sustain care at home while addressing one of the greatest unmet needs in pediatric healthcare.
The Care Continuum Explained
A deeper look at how Pediatric Palliative Care Centers (PPCCenters) strengthen the pediatric care continuum through community-based care, sustainable financing, and collaboration with existing healthcare providers.
Insights & References
A library of essential data, visuals, and research insights that reveal the scope of the need and the opportunity for systemic change.