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Guest Speaker – October 7, 2023
Inaugural Fall Breakfast
Guest Speaker – September 28, 2023
Launch Event – September 21, 2023 Launch Event Recording https://childrensrespitehomes.org/unite-for-medically-fragile-children-launch-event-recap/
Guest Speaker: Abigail E Keller Foundation – August 12, 2023
The night honored Abigail Elizabeth Keller, the inspiration and namesake behind the impactful Austin-based nonprofit. Providing essential tools and services to medically fragile children and their families, including community outreach programs, financial grants for items not covered by insurance and Family Care packages for those entering hospice programs, the organization has raised more than $400,000 since their inception in 2019.
The annual gala also acts as a vital source of funding for the Foundation’s current mission of building Central Texas’ first pediatric respite/hospice facility.
“Our greatest mission is to change the narrative around hospice care for children and instead help families to cherish time with the ones they love most,” says the Foundation’s president, Melissa Keller. “This facility will serve as a safe space staffed with trained professionals, that is a comfortable setting outside of the home or hospital. Such a space is vital to families, especially those with other children at home, and there is currently nothing like this available in Texas.”
Emceed by 1998 Miss Texas USA Holly Mills-Gardner, the program included a key note speech from Ryan’s House’s Jonathan Cottor on his experience building one of only three pediatric respite/hospice homes in the entire country. With the goal to establish the same groundbreaking care for Central Texans, Abigail’s parents Melissa and Travis continue to spread the same light as their daughter with neighbors in need.
Guest Speaker: Arizona College of Nursing – February 15, 2023
Sharing his lived experiences as a dad of a child diagnosed with Spinal Muscular Atrophy, Jonathan wove his family story of Ryan’s birth, diagnosis and introduction to the Helen House care model during their years in England and how it impacted their return to Arizona and the founding of Ryan House. The nursing students learned how these freestanding pediatric palliative care homes fill a missing gap in a community’s care continuum, and the crucial roles that nurses play in not only providing care but also as leaders in this rapidly developing field of pediatric palliative care. He updated them to the exciting progress being made in the newly formed National Center for Pediatric Palliative Care Homes, and the vision to support expansion of U.S. home-based care providers.
The nursing labor shortage can be felt even more dramatically within U.S. home health agencies, as many new RN graduates pursue careers in hospitals that often pay significantly higher wages. A goal of Jonathan’s time with the Nursing students was to highlight the value of relationships and quality of care connections that are made between nursing professionals and children with life-limiting conditions and their families, and to encourage consideration for pursing home-based careers. For many, it is a calling!
National Lifespan Respite Conference: Reimagine Respite – September 14, 2022
Conference Breakout Session: Recharge caregivers by filling gap in unmet overnight respite thru scaling Children’s Hospice Homes
Presenter: Jonathan Cottor, NCPPCH Leadership
Communities fortunate enough to have a Children’s Hospice Home are reimagining a solution to meet the unmet overnight respite needs of family caregivers. A ground-breaking national center of excellence has formed in 2022, to promote the scaling of community-based pediatric palliative and hospice programs, including Children’s Hospice Homes. Learn and be inspired to connect and engage.
Episode 13: House Away From Home
As Sarah and Dan continue their international tour in 2022, they find themselves surprisingly close to home in Phoenix, Arizona... by way of England, and by way of an inspiring story of community, advocacy, and ingenuity.
In this Episode your PediPal crew hears the story of the Cottor family and the founding of Ryan House, as well as the hopes for the future of pediatric hospice houses in the USA. And they learn some of the logistical challenges on the other side of their common "If I won the lottery..." fantasy.