Inside a Care Home
A Home-Like Model for our Most Fragile Families
Pediatric respite, palliative, and hospice care homes — often referred to as "Children’s Respite Homes" — offer a unique model of care for children with life-limiting conditions. These freestanding homes are intentionally designed to provide short overnight stays in a setting that feels like home — not a hospital or medical facility — yet staffed with highly skilled professionals ready to meet complex medical needs.
Anything a trained caregiver can do at home — tracheostomy care, suctioning, medication management, adaptive equipment use — can be done inside a care home. The goal is simple but profound: to give families a safe, trusted place to turn when they need time to rest, regroup, or simply be parents instead of full-time caregivers.
Each home is pediatric palliative care-centered, family-inclusive, and rooted in compassion. Children may come for overnight respite, symptom management, transitional support, or — when the time comes — end-of-life hospice care in a space that allows the whole family to remain together. Families are never charged for these services.
What Care Homes Typically Offer:
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Overnight Respite Stays (typically 2–7 days, multiple times a year)
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Palliative Care Along the Journey (symptom management, family support)
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Hospice Care When Needed (no time limits, always family-centered)
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Siblings and caregivers welcomed during initial visits and beyond
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Continuity of Care through strong staff retention and familiarity with rare diagnoses
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24/7 Nursing Oversight with a medical director and the child’s primary provider still in charge
Each home is pediatric palliative care-centered, family-inclusive, and rooted in compassion. Children may come for overnight respite, symptom management, transitional support, or — when the time comes — end-of-life hospice care in a space that allows the whole family to remain together. Families are never charged for these services.
“This is not a place for dying. It is for living — even though those lives may be short.”