Unite for Medically Fragile Children in the USA
The Future of Community-based Pediatric Palliative Care Homes
September 21st 2023, 10am PDT
Zoom Live Connect
Join us on September 21st, 2023 from 10 - 11am, for the launch of the National Center for Pediatric Palliative Care Homes. This is an exciting virtual gathering of thought leaders, advocates, and families, all united in a common cause: improving the lives of medically fragile children and their families by building community-based provider capacity in the U.S.
Our speakers are pioneers in their fields, each bringing a unique perspective and wealth of experience:
CEO/Founder of NCPPCH, and Co-founder of Ryan House, the second freestanding U.S. pediatric palliative respite home,
Jonathan will share his journey and the vision of NCPPCH. His personal experience and dedication have been instrumental in shaping the landscape of community-based pediatric palliative homes in the U.S.
Kathy Nicholson Hull
Founder of George Mark Children's House, the first freestanding pediatric palliative care home in the U.S., Kathy will share her experiences and insights from her pioneering work in the field. Her groundbreaking efforts have paved the way for others, and continue to inspire those striving to do the same.
Leader of Rays for Rare and aspiring founder of a home for her community, Megan will share her personal story of loss and how it inspired her to advocate for life-limited children and their families. Her passion and commitment have made Rays for Rare a beacon of hope for many families navigating the challenges of caring for a medically fragile child.
A mom, CEO of A Rosie Place for Children, and board member of NCPPCH, Tieal will share her passion for the mission and her dreams for the future of respite care. Her leadership and vision have been crucial in shaping the direction of A Rosie Place for Children and community-based family supportive care.
Chief Executive of "Together for Short Lives", Andy will share views from his experience leading an organization that champions over 54 freestanding children's home programs across the U.K. They have been instrumental in shaping the landscape of pediatric palliative care in the U.K., and his insights will be invaluable for efforts here in the U.S.
An NCPPCH board member and chair of the Government Affairs Council, Rich will discuss the future of community-based home programs and the role of government support. His expertise in policy and advocacy is helping to shape a future where community-based care is accessible to all families who need it.
This event is a must-attend for anyone interested in pediatric palliative care, respite care, and the future of community-based support for medically fragile children and their families. Don't miss this opportunity to learn from these leaders and become part of the movement to bring respite homes to every state in the USA.
Mark your calendar:
September 21st, 2023
We look forward to welcoming you to this transformative event!